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Rare Diseases Epidemiology - Manuel Posada de la Paz, Stephen C. Groft
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In our etiologic research, we epidemiologists need to leave behind the concepts of 'cohort' study and 'case-control' study and adopt that of the etiologic study as the singular substitute… Plus…

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Rare Diseases Epidemiology - nouveau livre

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Medicine & Public Health; Epidemiology; Human Genetics; Health Promotion and Disease Prevention Biobank, Epidemiologic Research, Health Economics, Human Genetic, Orphan Drugs, Public Heal… Plus…

  - This inclusive text is the first publication to address rare diseases as a public health problem. The work analyzes the constraints on epidemiological research at the same time as supplying solutions. It organizes the data by rare diseases groups. Frais d'envoizzgl. Versandkosten, Livraison non-comprise
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This inclusive text is the first publication to address rare diseases as a public health problem. The work analyzes the constraints on epidemiological research at the same time as supplyi… Plus…

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Manuel Posada de la Paz; Manuel Posada de la Paz; Stephen C. Groft; Stephen C. Groft:
Rare Diseases Epidemiology - Première édition

2010, ISBN: 9789048194858

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Manuel Posada De La Paz; Stephen C. Groft:
Rare Diseases Epidemiology - nouveau livre

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Informations détaillées sur le livre - Rare Diseases Epidemiology


EAN (ISBN-13): 9789048194858
ISBN (ISBN-10): 9048194857
Date de parution: 2010
Editeur: Springer Netherland
535 Pages
Langue: eng/Englisch

Livre dans la base de données depuis 2011-11-18T18:43:29+01:00 (Paris)
Page de détail modifiée en dernier sur 2023-07-25T09:34:32+02:00 (Paris)
ISBN/EAN: 9048194857

ISBN - Autres types d'écriture:
90-481-9485-7, 978-90-481-9485-8
Autres types d'écriture et termes associés:
Auteur du livre: grof, posada, groft


Données de l'éditeur

Auteur: Manuel Posada de la Paz; Stephen C. Groft
Titre: Advances in Experimental Medicine and Biology; Rare Diseases Epidemiology
Editeur: Springer; Springer Netherland
542 Pages
Date de parution: 2010-09-08
Dordrecht; NL
Imprimé / Fabriqué en
Langue: Anglais
Not available, publisher indicates OP

EA; E107; eBook; Nonbooks, PBS / Medizin/Allgemeines; Epidemiologie und medizinische Statistik; epidemiological; Human Genetic; Rare Diseases; epidemiological methods; Biobank; Epidemiologic Research; public health problem; social epidemiology; cancer; Health Economics; prevention; Public Health; epidemiology; Orphan Drugs; B; Epidemiology; Human Genetics; Health Promotion and Disease Prevention; Epidemiology; Medical Genetics; Health Promotion and Disease Prevention; Biomedical and Life Sciences; Genetik, Medizin; Public Health und Präventivmedizin; BB

Rare Diseases.- Rare Diseases – Avoiding Misperceptions and Establishing Realities: The Need for Reliable Epidemiological Data.- Methods and Approaches.- Rare Diseases Epidemiology Research.- Evidence-Based Medicine and Rare Diseases.- Prevention, Diagnosis and Services.- The Importance of Case Reports in Advancing Scientific Knowledge of Rare Diseases.- Patient Registries: Utility, Validity and Inference.- Biobanking in Rare Disorders.- Evaluation of the Validity and Utility of Genetic Testing for Rare Diseases.- Population-Based Surveillance for Rare Congenital and Inherited Disorders: Models and Challenges.- Statistical Methods for the Geographical Analysis of Rare Diseases.- Clinical Trials and Rare Diseases.- Pharmacoepidemiology.- A Regulatory Overview About Rare Diseases.- Economics and Social Epidemiology.- Economic Considerations in the Provision of Treatments for Rare Diseases.- Rare Diseases Social Epidemiology: Analysis of Inequalities.- Quality of Life and Rare Diseases.- Cost of Illness and Economic Evaluation in Rare Diseases.- Epidemiology of Group of Rare Diseases.- The Burden of Rare Cancers in Europe.- Hereditary Channelopathies in Neurology.- Osteochondral Diseases and Fibrodysplasia Ossificans Progressiva.- The Prevalence of Congenital Anomalies in Europe.- Rare Autoimmune Diseases.- Epidemiology of Rare Anaemias in Europe.- Inherited Metabolic Rare Disease.- The Contribution of Rare Diseases to Understanding the Epidemiology of Neurodevelopmental Disabilities.- Policy and Ethics Issues in Rare Diseases.- Creating a European Union Framework for Actions in the Field of Rare Diseases.- National Plans and Strategies on Rare Diseases in Europe.- Ethical Aspects on Rare Diseases.- Patient Organizations Role.- Advocacy Groups and Their Role in Rare Diseases Research.
It is the first book edited on Rare Diseases Epidemiology Develops a comprehensive approach to the rare diseases epidemiological problems Teach the best knowledge currently available Opens future perspectives for health planning and decision making Provides a general framework for physicians, public health experts and basic researchers

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